From June 19-21, the “International Symposium on Usher Syndrome” was organized by Radboudumc and Stichting Ushersyndroom. In total more than 400 scientists, caregivers and patients attended and shared knowledge on all different aspects related to the disorder, and also Lifelong Vision was well-represented. Members of our consortium actively participated in the scientific meeting (19-20 June) and interacted with patients during a “Meet the Scientist” event on the community day (21 June).
During the USH2025 social event the “Can I catch your Eye?” exhibition was officially opened; a series of photographs of Usher syndrome patients, family members, scientists and medical specialists along with their stories were exhibited in the Stevenskerk in Nijmegen with the purpose of giving the disorder a face.
All in all, it has been a very successful meeting! The next international symposium, USH2027 will be held in Boston, USA.
The following video captures the essence of the symposium perfectly!
to view this item in Dutch please go to: Informatie voor patienten - Nieuws
Related news items
First Summer School Brings Together Young Researchers for Two Inspiring Days
7 July 2026On Thursday 25 and Friday 26 June, we successfully hosted our first Summer School. Despite taking place during the hottest days of June, the enthusiasm and engagement of all participants made it a great success!
go to page
Making Science Visible
20 June 2026Award winning photograph by researcher Ivar Noordstra (Radboudumc) has attracted national attention. [ad.nl]
go to page
2nd Lifelong VISION Amsterdam seminar
28 May 2026On the 16th of April, the 2nd Lifelong Vision Amsterdam seminar brought our community together in a brisk afternoon of curiosity and collaboration.
go to page
Sensathon 2026 - Searching for answers together
13 April 2026On April 10th, Susanne Roosing, Rob Collin and Sterre Mulder of the LifeLong Vision consortium organized with Mechteld van Olden and Dirk Wijn the Sensathon, during the Hearing & Vision 4 All research program day at Radboudumc.
go to page
Breakthrough in Research on Inherited Blindness!
12 January 2026Researchers at Radboudumc have discovered a new genetic cause of retinitis pigmentosa (RP) — an eye disease affecting about 1 in 5,000 people worldwide, often leading to tunnel vision and eventually complete blindness.
go to pageZohreh Hosseinzadeh at BMPN Annual meeting
24 November 2025At the BMPN Annual meeting Zohreh Hosseinzadeh presented Lifelong Vision as an example of promoting collaboration between clinical practice and scientific research.
go to page