From June 19-21, the “International Symposium on Usher Syndrome” was organized by Radboudumc and Stichting Ushersyndroom. In total more than 400 scientists, caregivers and patients attended and shared knowledge on all different aspects related to the disorder, and also Lifelong Vision was well-represented. Members of our consortium actively participated in the scientific meeting (19-20 June) and interacted with patients during a “Meet the Scientist” event on the community day (21 June).
During the USH2025 social event the “Can I catch your Eye?” exhibition was officially opened; a series of photographs of Usher syndrome patients, family members, scientists and medical specialists along with their stories were exhibited in the Stevenskerk in Nijmegen with the purpose of giving the disorder a face.
All in all, it has been a very successful meeting! The next international symposium, USH2027 will be held in Boston, USA.
The following video captures the essence of the symposium perfectly!


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